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Off Topic Discussion => Community Lounge => Topic started by: jules778 on March 03, 2007, 12:46:55 AM

Title: Sleep Apnea
Post by: jules778 on March 03, 2007, 12:46:55 AM
Ok so I know crazy new thread.  But I just got diagnosed with sleep apnea... which would explain my being exhausted all the time.(being fat doesn't help either). :D So I was wondering if anyone else out there has it and how long it took to get used to wearing that mask to sleep.
 The docs. told me I had a very severe case (I stop breathing 96 times / hour) Yeah! I was shocked to hear that too. And I snore at a very loud Level 6 out of 10... when most loud snoreres are at a level 3. No wonder no one ever wants to share a room with me.  So anyways do you have it and if so do you feel better now?
Title: Re: Sleep Apnea
Post by: Sunflower on March 03, 2007, 12:49:18 AM
You have to wear a mask for that?  What is it like? How did you find out?
Title: Re: Sleep Apnea
Post by: jules778 on March 03, 2007, 12:53:28 AM
I will have to wear a mask.  I found out because I was always tired... would wake up w/ a sore throat and sometimes coughing when I woke up. I also snore very loud. I finally went to a sleep disorder clinic and they put all these wires all over and some things like and oxygen tube up my nose and now they say ... sleep apnea... I could also get surgery to have my soft palet reduced and nasal stuff to open up my airways... but w/ insurance they want me to try the machine first. I won't get my machine for three weeks though.
Title: Re: Sleep Apnea
Post by: Sunflower on March 03, 2007, 12:57:36 AM
I snore  :-\
Title: Re: Sleep Apnea
Post by: Ladybug on March 03, 2007, 01:18:26 AM
my husband has self-diagnosed me with sleep apnea.   ::)

he really does think i need to get tested, i'm constantly tired, snore like crazy, basically, what you just said.  i probably should get tested.

one of the guys he used to coach with has it, and he has gotten used to the mask and won't go anywhere without it.

good luck.
Title: Re: Sleep Apnea
Post by: jules778 on March 03, 2007, 01:20:30 AM
my husband has self-diagnosed me with sleep apnea.   ::)

he really does think i need to get tested, i'm constantly tired, snore like crazy, basically, what you just said.  i probably should get tested.

one of the guys he used to coach with has it, and he has gotten used to the mask and won't go anywhere without it.

good luck.
definatly get tested the doc. scared the crap out of my telling me I could die real young b/c my heart is working too hard
Title: Re: Sleep Apnea
Post by: Namaste on March 03, 2007, 01:14:31 PM
I'm a nurse and actually - I havent found one person that really likes to use the mask.  It's big a bulky but I've heard first hand from patients that it is worth wearing in the long run.  You will feel so much better.  Other than it blowing air into your lungs when you stop breathing and drying out all your mucus membranes ... you will benefit greatly !!  You certainly have a severe case.  I've NEVER met anyone who stops breathing 96 times in one minute.  Considering there are only 60 seconds in a minute, your lucky to still be alive !!!   :o

On the other hand, if you have any questions, I'll help.  If I dont know the answer off hand I sure have the resources to find out for you.
Title: Re: Sleep Apnea
Post by: librarian on March 03, 2007, 01:52:37 PM
I have been wearing a mask for over 3 years, i got used to it during the 1st week but my wife still sleeps in another room :D

http://synchromysticism.blogspot.com/
Title: Re: Sleep Apnea
Post by: amoparman on March 03, 2007, 02:29:38 PM
Supposed to wear mine, but can't cause I'm too stuffed up...  but it does work
Title: Re: Sleep Apnea
Post by: lostfromthestart on March 03, 2007, 04:18:54 PM
I too have sleep apnea - snore loud, and tested with 69 times per hour stopped breathing.  Then they put the mask on and tell you to sleep the rest of the night with it while at the center.  I hated it!!  I felt like I slept worse with it on.  Couldn't imagine wearing it to bed the rest of my life.

Then my dentist offered to get me a mouth piece that he molds to my mouth.  I wear this every night. It pulls your lower yaw forward which keeps your throat open.  Try it while you read this.  Shove your chin forward and breath thru your nose with your mouth shut.  Works, doesn't it!!  I thought it would give me a horrendous under-bite, but no ill effects.  And I sleep much better.  I forgot it on a recent romantic getaway with my wife.... not good.  Neither drove her from the room with my snooring and had terrible sore throat in the morning.

Ask your dentist and look into it.  It worked for me, and it can work for you too.

This unsolicited and unpaid endorsement has been provided by LFTS.
Title: Re: Sleep Apnea
Post by: jules778 on March 03, 2007, 09:00:08 PM
you're right that does help.  I used to sleep w/ a mouth piece so I wouldn't grind my teeth. I hated it.
Title: Re: Sleep Apnea
Post by: Ladybug on March 03, 2007, 09:45:16 PM
[deeppink]i sleep with a mouthpiece because i grind my teeth and have since i was 16.  i don't know that i could do the special mouthpiece because i have tmj and i think that would probably make my jaw problems even worse.[/color]
Title: Re: Sleep Apnea
Post by: scrod on March 03, 2007, 11:27:14 PM
There are some mask types that are better than others.  Ask the company that supplies your CPAP to bring more than one type to see what is most comfortable for you.  I use one ( i think it is the mirage swift) that has nasal pillows.  You are going to be using this for a third of every day - It has to be comfortable, don't let them push something crappy on you.
Title: Re: Sleep Apnea
Post by: jules778 on March 04, 2007, 03:44:35 PM
.  I've NEVER met anyone who stops breathing 96 times in one minute.  Considering there are only 60 seconds in a minute, your lucky to still be alive !!!   :o

not 96/min.... 96 times an hour
Title: Re: Sleep Apnea
Post by: Sunflower on March 04, 2007, 03:53:48 PM
Well, I'm relieved to hear that  ;)  I couldn't figure out how you breathed at all.  This thread makes me think I should record myself sleeping.  That is a frightening thought!
Title: Re: Sleep Apnea
Post by: E-Rich on March 04, 2007, 08:50:51 PM
Jules -

My dad has/had a really bad case of sleep apnea and has tried several masks for his CPAP machine.  He's finally found the perfect one for him...the one that covers both your mouth and nose and has a small pad that rests on your forehead. 

Recently he's been seeing a pulmonologist and found out that he has a "large tongue" which has been adding to the sleep apnea due to his deviated septum (most of us have deviated septums).  ANyway there is some new aparatus that you can wear, much like a retainer, that will hold the tongue forward so you can breathe!  I know it sounds like a fake disease...but you might also check into Restless Leg Syndrome.  I always thought it sounded like a made up disease...but it is real and can also contribute to sleep problems.  I would look into the underlying problems of your sleep apnea and try to fix those and maybe you won't have to always be hooked to amachine to get some shut eye!  (look into takin out your tonsils, too - if they are enlarged it can be a problem).

Disclaimer:  I am not, nor plan on becoming, a doctor.  Take everything I say with a grain of salt.  Please know that my brother is an MD, my dad has sleep apnea, and I come from a family of avid researchers....;)
Title: Re: Sleep Apnea
Post by: MaxsDad on March 05, 2007, 09:51:14 AM
I have had it all my life, I have on occasion in my life woken gasping for breath (even when I was a child.), I snore loudly and spend most of the time sleeping in the living room because I keep my wife awake. Sometimes when Max wants me to lay with him till he falls asleep I have dozed off and  he has woke me up telling me I snore!  I heard its heridetary. Max also snores and wakes up coughing in the middle of the night. I hardly slept at all the first few months of his life I was constantly checking on him to see if he was still breathing.

I took the sleep test last summer, I dont remember the count but they came in and put the C-pap on me about an hour after I went to sleep. They recommended I get a C-pap and so did my Doctor. But my Insurance doesnt cover it, I was wondering how much would the mouth piece cost compared to the C-pap?
Title: Re: Sleep Apnea
Post by: lostfromthestart on March 05, 2007, 11:09:15 AM
As I recall, the CPAP machine was several thousands of dollars (someone correct me that actually bought one).  My mouth piece was about $250.  I have used it for maybe 6 years.  It doesn't stop me from snoring completely, but vastly, VASTLY improved.  But I do not believe I stop breathing anymore, which is more important.  And I don't wake up with a soar thoat anymore.

In addition, two years ago I had my deviated septum straightened.  While doing it they also found a bone spur blocking some of my nasal passages.  This surgury greatly improved my ability to breathe thru my nose.. awake or asleep.. and when combined with the mouth piece opening my throat up it is a wonderful improvement.
Title: Re: Sleep Apnea
Post by: MaxsDad on March 05, 2007, 11:38:28 AM
As I recall, the CPAP machine was several thousands of dollars (someone correct me that actually bought one).  My mouth piece was about $250.  I have used it for maybe 6 years.  It doesn't stop me from snoring completely, but vastly, VASTLY improved.  But I do not believe I stop breathing anymore, which is more important.  And I don't wake up with a soar thoat anymore.

In addition, two years ago I had my deviated septum straightened.  While doing it they also found a bone spur blocking some of my nasal passages.  This surgury greatly improved my ability to breathe thru my nose.. awake or asleep.. and when combined with the mouth piece opening my throat up it is a wonderful improvement.
Thanks Jeff, I will ask my Dentist about the Mouth piece. And yes a brand new c-pap is big bucks but you can buy a used one on line for a few hundred...but then again I dont have a few hundred laying around.  :-\
Title: Re: Sleep Apnea
Post by: therealsawyer on March 05, 2007, 04:38:17 PM
I was tested for apnea but diagnosed with insomnia instead, but I did quite a bit of research  It's actually a pretty scary diagnosis but just being aware of it can really help. 

You mentioned weight issues; apnea can contribute to your body being more inclined to gaining weight.  The body doesn't differentiate types of stress and the stress of not sleeping restfully (one of the most stressful things that can happen over time is sleep deprivation) causes the body to react by storing energy (as if you were stranded on an island).  It's a kind of downward spiral.  A friend of mine actually lost about 50 pounds after having a surgery to help his apnea without really changing his diet or exercise routine.  ( I do think he was more active due to his increased energy level.)
Title: Re: Sleep Apnea
Post by: jules778 on March 05, 2007, 05:36:57 PM
You mentioned weight issues; apnea can contribute to your body being more inclined to gaining weight.  The body doesn't differentiate types of stress and the stress of not sleeping restfully (one of the most stressful things that can happen over time is sleep deprivation) causes the body to react by storing energy (as if you were stranded on an island).  It's a kind of downward spiral.  A friend of mine actually lost about 50 pounds after having a surgery to help his apnea without really changing his diet or exercise routine.  ( I do think he was more active due to his increased energy level.)

Here's Hoping....!!!!   
Title: Re: Sleep Apnea
Post by: Cardacct on March 05, 2007, 10:28:15 PM
Whenever I read about what can ail you, I am like, "oh no!  I probably have that!"  Yeah, so now I'm all ... scared that I have sleep apnea.  Except, I still don't really know what it is.  All I know is that I usually breathe through my mouth when I sleep, and I occasionally wake up with a sore throat.  I don't think I snore loudly (at least, nobody has told me that I do).  Yes, I snore sometimes, but so do most people at some point and to varying degrees.  And, I'm always tired.  Yikes!
Title: Re: Sleep Apnea
Post by: Sunflower on March 05, 2007, 11:09:00 PM
I didn't think I snored much either and recently everyone I know, pretty much everyone whose known me well enough to be around when I'm asleep (family and a few close friends)  told me that I am a avid snorer (if that is even a word).  I am serious when I say I am going to record myself one night.  I really don't want to, but I guess I should just take the bull by the horns  :-\  ;D  I wake up tired, but not with a sore throat.
Title: Re: Sleep Apnea
Post by: scrod on March 06, 2007, 12:29:45 AM
I didn't think I snored much either and recently everyone I know, pretty much everyone whose known me well enough to be around when I'm asleep (family and a few close friends)  told me that I am a avid snorer (if that is even a word).  I am serious when I say I am going to record myself one night.  I really don't want to, but I guess I should just take the bull by the horns  :-\  ;D  I wake up tired, but not with a sore throat.
We kept telling a friend to get checked and she wouldn't so finally one night we had her put her video camera on just before she fell asleep.  She was shocked and frightened at what she saw, called the doctor as soon as they opened.  She has CPAP after her sleep study the next week after that.
Title: Re: Sleep Apnea
Post by: jules778 on March 06, 2007, 12:48:43 AM
Cardacct,  sleep apnea is basically when your brain doesn't control the muscles in your mouth when your asleep,... ie: soft palet and tongue, as well as when your awake.  The muscles basically relax to the point where your airways become blocked and you stop breathing for a period of time. It is usually a short period but long enough that your oxygen level decreases. The breathing being stopped cannot cause you to die...b/c your brain eventually tells your body that you need to take a breath. Some people wake up gasping for air, or some coughing and so on. But the doctor told me that a person can die from the wear on the heart from working so hard to get oxygen to the body. So in a nutshell that is what it is. If you're tired all the time and you know that you snore it is worth getting tested. You never know and wouldn't we all like more energy. I know I can't wait to get my machine and get some good sleep. I wake up probably 5-8 times a night. I am not sure if I wake up b/c by brain is getting me to breath, but I hope that is the reason. Cause that will mean I will be able to sleep the whole night. My doctor said he was suprised I was functioning.
Title: Re: Sleep Apnea
Post by: MaxsDad on March 06, 2007, 03:40:52 AM
Cardacct,  sleep apnea is basically when your brain doesn't control the muscles in your mouth when your asleep,... ie: soft palet and tongue, as well as when your awake.  The muscles basically relax to the point where your airways become blocked and you stop breathing for a period of time. It is usually a short period but long enough that your oxygen level decreases. The breathing being stopped cannot cause you to die...b/c your brain eventually tells your body that you need to take a breath. Some people wake up gasping for air, or some coughing and so on. But the doctor told me that a person can die from the wear on the heart from working so hard to get oxygen to the body. So in a nutshell that is what it is. If you're tired all the time and you know that you snore it is worth getting tested. You never know and wouldn't we all like more energy. I know I can't wait to get my machine and get some good sleep. I wake up probably 5-8 times a night. I am not sure if I wake up b/c by brain is getting me to breath, but I hope that is the reason. Cause that will mean I will be able to sleep the whole night. My doctor said he was suprised I was functioning.
Good post Jules.

 Maybe you wont die from it but it is a terrifying experience  to wake up suffocating gasping for air, not to mention your spouse watching it.

 If you think you have it get it checked! :(
Title: Re: Sleep Apnea
Post by: Sunflower on March 06, 2007, 11:36:43 PM
So I just looke at pictures of these masks.  There seems to be a wide variety, some more comfortable looking than others.  Can you choose one?  Or just use the one they give?
Title: Re: Sleep Apnea
Post by: jules778 on March 07, 2007, 12:10:40 AM
i am not sure yet. I have to wait till after my sleep study to find out. Once they figure out what kind of pressure I need then I think I take a prescription to the store to get the right kind.
Title: Re: Sleep Apnea
Post by: Cardacct on March 07, 2007, 02:03:25 AM
Hmmm... I never wake up in the middle of the night.  I can sleep through practically anything.  Does that disqualify me?
Title: Re: Sleep Apnea
Post by: lostfromthestart on March 07, 2007, 08:12:57 AM
I never wake up either (unless I gots to go potty) but I sure keep every one else awake!!  And yes, I do have sleep apnea.
Title: Re: Sleep Apnea
Post by: E-Rich on March 08, 2007, 07:34:13 PM
So I just looke at pictures of these masks.  There seems to be a wide variety, some more comfortable looking than others.  Can you choose one?  Or just use the one they give?

You can choose the kind you like the best.  My dad (being truly himself) tried every sinlge one and then settled for the one to cover the nose and mouth.
Title: Re: Sleep Apnea
Post by: jules778 on March 10, 2007, 11:43:30 PM
they supposedly have one you wear like a mouthpiece... I would like that one
Title: Re: Sleep Apnea
Post by: DizzyIzzy on May 25, 2007, 01:55:41 PM
[deeppink]i sleep with a mouthpiece because i grind my teeth and have since i was 16.  i don't know that i could do the special mouthpiece because i have tmj and i think that would probably make my jaw problems even worse.[/color]

I have tmj and without the mouthpiece, I wake up with a tension headache.  I love the mouthpiece.  I also have fibromyalgia and the mouthpiece really helps keep the pain level down.
Title: Re: Sleep Apnea
Post by: Ladybug on May 25, 2007, 02:38:11 PM
[deeppink]i sleep with a mouthpiece because i grind my teeth and have since i was 16.  i don't know that i could do the special mouthpiece because i have tmj and i think that would probably make my jaw problems even worse.[/color]

I have tmj and without the mouthpiece, I wake up with a tension headache.  I love the mouthpiece.  I also have fibromyalgia and the mouthpiece really helps keep the pain level down.
i too have tmj and wear a mouthpiece.  i lost it (actually i think my dog got a hold of it somehow and chewed it up).  it's killing me.  i have to go back to the dentist to get a new one, but have been putting it off because they are SO expensive!
Title: Re: Sleep Apnea
Post by: DizzyIzzy on May 25, 2007, 07:43:10 PM
My dog got my first one too.  And yes it is expensive!  Don't really know why.  I have a case for mine now...dog is really gonna have to make an effort to get the one I have now!